You have completed 0% of this survey
Caution: JavaScript execution is disabled in your browser or for this website. You may not be able to answer all questions in this survey. Please, verify your browser parameters.

Rare Disease Diagnosis: Impact on Medical Service Use and Psychosocial Outcomes (OO_CR)

Thank you for your interest in our study investigating the impact of undergoing genetic testing for a rare disease (regardless of the result). You have been invited to participate as you are either an adult who has undergone genetic testing for a rare disease in Australia, or a parent/carer of someone who has. 

We would like your assistance in completing this survey. Answering these questions will give us further insight into the impact of undergoing genetic testing/receiving a diagnosis for a rare disease.