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Rare Disease Diagnosis: Impact on Medical Service Use and Psychosocial Outcomes (OO_CR)

Thank you for your interest in our study investigating the impact of undergoing genetic testing for a rare disease (regardless of the result). You have been invited to participate as you are either an adult who has undergone genetic testing for a rare disease in Australia, or a parent/carer of someone who has.

We would like your assistance in completing this survey. Answering these questions will give us further insight into the impact of undergoing genetic testing/receiving a diagnosis for a rare disease.